Who got Myasthenia Gravis?

In 2006 I was diagnosed with Myasthenia Gravis...I didn't know what was that. Is a weird name and rare desease. I have badly weakness symptoms. I went for plasma phereses Im in so much prednisone and medication that from 125lbs I blew up to 170lbs im really swollen and in top of that they want me to get the Thymectomy surgery (open chest)to remove my thymus gland. Is not a cure cuz myasthenia gravis don't have cure but treatment so is a 33% to feel much better and have least symptoms is 33% you won't have no results and 33% of something else that i forgot. do someone or if u know someone that have Myasthenia Gravis. what they did to get there desease feel better?